Jean Campbell
Vice President of Membership Development,
National Organization for Rare Disorders (NORD)
Danbury, Connecticut, United States

Jean has been with NORD since 1992, working in the organization’s Patient Assistance Programs for the first three years and later joining the Development staff, which she led since 1998.  Under her leadership, there was a significant expansion of several of NORD’s membership programs along with the creation of NORD’s restricted research, medical meeting and clinical broadcast programs. Jean played a key role in the establishment of the NORD Corporate Council which, since its inception in 1999, has grown to include more nearly 50 pharmaceutical and biotechnology companies.

Her areas of responsibility in recent years have included organizing two major annual events: the NORD Conference and Tribute Banquet, which have both grown under her direction. In addition, she has worked closely with the National Institutes of Health (NIH) Office of Rare Diseases to organize regional meetings for patient organizations focusing on how patient groups may work effectively with NIH.

In the Spring of 2009, Jean was named Vice President of Membership Development. Her responsibilities include enhancing and expanding services to NORD Member Organizations, for providing mentorship to start-up patient organizations, to bring additional rare disease organizations under NORD’s ‘umbrella’, and to discover pathways to better collaborations within the rare disease community.

Jean received a B.A. in History from Hunter College in NYC and Development Certifications from Marymount College and Western Connecticut State University. Jean currently represents NORD on America’s Charities’ Health 1st Board of Directors. Prior to joining NORD, Jean held positions in education and business. She is active as a volunteer in health organizations, schools, and several local service clubs.