Saturday, 20 February 2010 17:21

2009 Castleman's Disease Summit

Successful ICDO Summit Raises Awareness About Castleman’s Disease

ICDO hosted a one-day Summit on December 2, alongside the 51st American Society of Hematology (ASH) Annual Meeting in New Orleans, LA.  Sponsored by Johnson & Johnson Pharmaceutical, Research & Development, LLC and OrthoBiotech, the summit featured an international panel of medical experts discussing epidemiology, symptoms, diagnosis and new treatment options for Castleman’s Disease.  Several patients shared their experiences and offered their perspective on living with the disease.

ICDO videotaped the summit sessions so that Castleman’s Disease patients and caregivers around the globe could benefit from the information shared during the event.  In addition, one-one-one interviews were conducted with several Summit speakers eager to share their insights and experiences with this rare disease.

ICDO invites you to browse the Summit pages of our website, which includes videos (below), audio recordings, speaker presentations and bios, summit agenda and information about our sponsors.

Lastly, we are pleased to share our latest publication: “About Castleman’s Disease.”  Sincere thanks to Johnson & Johnson Pharmaceutical, Research & Development, LLC and OrthoBiotech for funding provided to develop this new resource. download publication pdf

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Last modified on Thursday, 25 February 2010 18:14
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3 comments

  • Comment Link Jim Johnston Friday, 02 April 2010 01:36 posted by Jim Johnston

    Thanks for your feedback. We have solved the video issue with session 8.

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  • Comment Link Penny Evans Wednesday, 31 March 2010 14:05 posted by Penny Evans

    yes i watched this and this was everything i been going through. I too have castleman diease. So thank you Jim, for all the info that I will be giving my doctors. I called that doctor who specializes in this diease and he is sending me info on an assesment. I cant thank you enough for your website and this video. I'm in Oklahoma.

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  • Comment Link Ryan Olson Sunday, 28 February 2010 14:34 posted by Ryan Olson

    This was Great! I am a patient with MCD in Iowa and was looking forward to the video feed. I wanted to let you know session 8 making a difference stopped playing at 1 min 51 seconds. I really look forward to hearing Gregs story when available.

    Thanks Ryan Olson

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