Summit Agenda
Advancing Excellence in Castleman’s Disease Care
Wednesday, December 2, 2009
Wyndham Riverfront New Orleans
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9:00 am           Summit registration / continental breakfast

10:00 am         Welcome and introductions

• Jim Johnston, Founder and Executive Director, International Castleman’s Disease Organization
• David Golub, Vice President, Mark Krueger & Associates, Inc.

10:15 am         Living with Castleman’s Disease: A Patient Perspective

• Razelle Kurzrock, MD, FACP, Chair and Professor, Department of Investigational Cancer Therapeutics; Anderson Clinical Faculty Chair for Cancer Treatment and Research, Division of Cancer Medicine, University of Texas M.D. Anderson Cancer Center
• Wayne Hook, Castleman’s Disease patient

11:00 am         Understanding Castleman’s Disease: Epidemiology, Histology and Diagnosis

• Guido Tricot, MD, PhD, Director, Stem Cell Transplant and Myeloma Program, University of Utah School of Medicine

11:45 am         Treating and Managing Castleman’s Disease

• Frits van Rhee, MD, PhD, MRCP (UK), FRCPath, Professor of Medicine, Director of Clinical Research, Myeloma Institute for Research and Therapy, University of Arkansas Medical Sciences

12:30 pm         Luncheon service

1:15 pm           An Introduction to the Rare Disease Advocacy Community

• Jean Campbell, Vice President of Membership Development, National Organization for Rare Disorders (NORD)

2:00 pm           Break

2:15 pm           Panel Discussion: Advancing Excellence in Castleman’s Disease Care

Panelists:

• Corey Casper, MD, MPH, Associate Professor of Medicine, Allergy & Infectious Diseases, Adjunct Associate Professor, Epidemiology and Global Health, University of Washington; Assistant Member, Vaccine and Infectious Diseases Institute, Director, Uganda Program on Cancer & Infectious Diseases, Fred Hutchinson Cancer Research Center
• H. Miles Prince, MBBS (Hons), MD, MRACMA, FRACP, FRCPA, Director, Centre for Blood Cell Therapies, Peter MacCallum Cancer Centre
• Jean-Francois Rossi, MD, PhD, Department Head, Hematology and Medical Oncology, CHU Saint Eloi, Montpellier

Moderator:

• David Golub, Vice President, Mark Krueger and Associates, Inc.

3:30 pm           Making a Difference in Castleman’s Disease Care

• Greg Pacheco, Castleman’s Disease patient

4:00 pm           Concluding Remarks

4:15–6:00 pm  Networking Reception